When I was diagnosed with Endometriosis, I only knew one other woman with Endo and she was not willing to talk about her journey because of the stigma she had received. I was alone; I felt like an anomaly. My journey with Endo was very lonely and depressing. There are many times that I was almost consumed by these feelings. Suicide crossed my mind a couple of times. By God’s grace, I made it through.
As I researched about Endometriosis a few years back, I realized that there were many stories from the UK and USA but very few, if any, from Kenya. A few years later, I found other women in Kenya who were fighting Endometriosis; I was encouraged and wished I’d heard these stories of pain, strength and courage earlier.
A couple of months ago, I had a dream to share stories of women suffering from Endometriosis in Kenya. I wanted the world at large and the people of Kenya to know that:
*If you know ten women, you know Endometriosis. It affects one in ten women.
*Endometriosis does not fit in a box, it is vast and multi-faceted. It attacks different organs, so every woman’s experience in unique.
*Endometriosis doesn’t have a trademark look. Many women are suffering yet they look normal. Behind their smiles are souls that carry pain unknown.
*Information is power. The more we talk about Endometriosis the more women we empower and together we decrease the stigma.
*We need policies that support women with Endometriosis in Kenya
*Specialized healthcare needs to be more affordable and accessible. Getting a diagnosis in Kenya is like buying a parcel of land.
Several months later,
Ladies and gentlemen, I present to you a new segment on this blog #TheKenyanEndoStory.
It will feature stories of pain, hope, courage and strength to encourage women in Kenya and around the world. The first story goes live in a few minutes.
If you would like to be featured in ‘Her Endo Story’ #TheKenyanEndoStory, please send an me an email via firstname.lastname@example.org and I will be in touch.