Endo Warriors At The Coast

If you are tired, learn to rest, not quit.

2019 has had more water breaks than sprints and dashes, but in the quiet moments, I have recharged and found new strength.

One of the ideas that was born in the extended water break was ‘Endo warriors at the Coast’, an idea that I have dabbled with and shelved many times over the years. But, when the time is right, things align, and ideas are actualized. Lives are changed.

Without a doubt, I am convinced that angels exist, that God sends divine helpers to hold our hands, provide solutions and remind us of His steadfast presence.

On 10th November we had our first support group meeting. Days later, my heart is still full. Full of joy, peace, hope and expectation. A group of 10 ladies assembled as strangers, and left three and half hours later, refreshed, and with a larger network of women in Mombasa.

We had an interactive session where we shared our journeys, talked about menstruation, menstrual hygiene products, and the herbs and products that are easily available in Mombasa. It was insightful, informative and refreshing.

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Freedom for Girls donated a pack of reusable pads and liners for each lady. We left with both our hearts and hands full.

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Shufaa shared a video with snippets of the event on her YouTube channel. You see what I meant about angels?

A huge thank-you to everyone who came and made this day possible.

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We have some upcoming events:

26th January 2019 – Endo warriors support meet up

23rd March 2019 – Endometriosis Awareness Event – Mombasa Edition

Details will follow. If you would like to learn more, or even plug in, please drop me a line on yellowendoflower@gmail.com.

Our individual voices may be faint, but together we are an army of warriors, creating a beautiful symphony, that will be heard.

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While We’re Waiting

Waiting can be hard, lonely and devastating. The dark corridors can dull your spark of hope, the echoes of discouragement can fill your cheeks with sadness and cause your eyes to overflow with tears.

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Waiting Wombs Trust is devoted to walking with women who are waiting on the Lord to hold children in their arms. The reasons for waiting may vary but the journey’s hurdles are similar. The love, grace, care and information that you receive from Waiting Wombs Trust are unmatched. They are more than a support group, they are a family, for those who have despaired, those who have lost, those are hanging on, those who are waiting.

They are hosting a ladies conference #hopeinwaiting on September 21st to 23rd at Pelican Lodge, Elementaita.

Some of the topics that they will cover are:

  • Keeping hope alive
  • What to do when he leaves
  • Grieving
  • Adoption
  • Health

If you would like to register or partner with them, please text the word ‘Conference’ to 0723144000 or send an email to info@waitingwombstrust.org.

One of the songs that have encouraged me while I have been in seasons of waiting is

May the Lord strengthen you as you wait, may you truly run and not grow weary. May you soar on wings like eagles.

There is hope in waiting!

Homemade Apple Cider Vinegar (With the Mother)

Apple Cider is one of my staples. It is way more effective than an energy drink, and a great plus is that it doesn’t give me heart palpitations. The last time I had an energy drink I thought I was going to die. My heart wanted to actively transport itself out of my chest. Instead of feeling energized, I felt anxious, hot, angry and out of control. I am low key intrigued by people who can have a Jägerbomb and live to tell a tale.

I have been using ACV on and off for the last couple of years, and I am sold. My main frustration is sometimes it goes out of stock when my bottle is close to empty, so sometimes I have to take a break from it. My body is not usually very happy about this- the fatigue and brain fog show up.

A few weeks ago, I sampled a kombucha brew that my friend made and I loved it. I told her I would make it and she asked me if I’d ever tried to make ACV. It piqued my interest and I decided to give it a shot after all the worst thing that could happen is it backfires and I go back to using the store-bought one as I restrategize.

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Thanks to Wellness Mama, which is a spring of valuable information, I made my first batch. It has taken slightly over 7 weeks but I now have 400ml of raw and unfiltered homemade ACV with the mother. I made a small batch to minimize my losses.

Anyone who would like to make their own ACV, here is the recipe that I used. Making it at home is perfect especially if you use it for multiple things such as skin care, cooking, and cleaning.

I’ll share my Kombucha brewing experience in my next post.

Have a lovely week 🙂

Jelly Fish

I wobbled up the stairs, wincing in pain while basking in joy.

I had survived my first workout in the gym. It was painful. I doubt I knew how long ten minutes really was prior to the kettle-bell circuit. Yo! I had started with a fire in my belly, ready to show myself that I wasn’t as rusty as I felt. At the fourth minute mark, I was asking myself why again I thought this was a good idea.

When I was done, my thighs burned. It made the ab workout feel like a resting period. home workouts had prepared my abs for the pain, but nothing, not even climbing stairs in buildings without stairs had prepared me for the burn in my thighs and glute.

It was painful but it was necessary. Last week I was battling fatigue all the time. I woke up tired and sluggishly moved along as the hours went by. In the afternoon I was spent, all I wanted to do was sleep.

I slept the first day and the second day. On the third day, my daughter, Miss K, told me that she thought I had slept enough. My sleeping and sluggishness meant that she couldn’t craft with me. In this season her language of love is crafts and paint, oh paint. She could paint all day long, and I now find painting therapeutic.

Her comment was my wake up call, I knew that I needed to do something about the fatigue. The next afternoon, when I snuck away to rest (read: sleep) I decided to work out instead. It didn’t feel exciting, nah! It took a lot of self-control to stay the course, but I finished and I felt great. Tired, but energized, and I was able to be more present for the girls later that day.

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Yesterday was my first day in a gym this year, I had run out of excuses why I couldn’t go. Miss K’s words rang through my mind as I did the workout. I felt like a wobbly jelly-fish when I was done, but that is much better than feeling like a hibernating bear.

Here’s to more jelly-fish days in the hope of one day having the energy, agility, and excitement for life like a dolphin.

 

 

 

 

Invitation To Partner

I could talk about periods all day long. What used to make me cringe and uncomfortable is now what make I have chosen to spend this season of my life talking about and training on.

I trained a group of ladies from Moi University a few days ago, and I loved it! There are way too many assumptions about menstrual health. The stigma surrounding menstrual health means that the lies have become truths, and there is no avenue to ask questions or to seek clarifications.

In some communities, girls are having sex soon after their menarche because the boys believe that sexual intercourse can cure cramps. Parents, religious insitutions and schools’s voices are faint compared to the uproar of their peers.

Sex is not a cure for for menstrual cramps. Pregnancy may provide temporary relief, but I believe that teenage pregnancy should not be a band-aid for underlying problems. Pregnancy and motherhood may come with other challenges.reach out and give someone a great big hug!.png

There is a great need out there. To some, this may just seem like just another period campaign, but it is more than just a period talk. It is the demolishing of myths, it is teaching of life-changing truths, it is the restoration of dreams and hopes, it is unveiling the – often-marred- beauty of being a woman. It is showing another side of the rose, while hoping to take away the memories of the prick of the thorn.

There are several opportunities that are coming up to train, inspire and mentor girls, and the truth is that I cannot do it alone.

If you would like to get to know more about the training sessions and how you can help to change a girl’s life, please send me an email via yellowendoflower@gmail.com.

 

Endo Story – Devon

When we share our stories, we empower and encourage other women. The pain is not all in your head, it is real. Endometriosis is real and you are not alone.

Devon is an endo warrior who lives in Yorkshire, UK. She was 25 years old when she was diagnosed with Endometriosis, now a year later she tells her story. This story is a reblog from Bloomin’ Uterus.

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Devon’s Journey:   Honestly, I couldn’t tell you if my journey started at 14 or 24. Many women have a long and traumatic timeline of events, knowing something was wrong and battling for an answer. Me? I had a life of this or that bothering me, visiting the GP, being told I’m normal or a hypochondriac (dependent on the GP I saw that day). I am the sort of person who somehow gets through life but no one, not even myself, really understands how I’m managing it so I never really pieced together that various symptoms may be linked. I just carried on and when something anomalous occurred (severe heavy bleeding out of nowhere, the kind of tiredness I just couldn’t shake, pain that just wouldn’t go). I’d sort of absent-mindedly visit my Dr, apologize for taking up their time and take whatever they said as gospel, fully trusting that they would know if something was wrong.

So it was that two years ago I popped into my GP’s office: “I’m sorry for visiting but I have a pain in the right-hand side of my stomach. It’s been there for a few weeks and it’s getting worse. At first, I thought maybe I just needed a poo…but I’ve pooed since then…” The Dr felt my tummy, tested me for pregnancy and sent me straight to hospital where a bed was waiting with advice that I probably had appendicitis. 3 days, 3 blood tests, 3 further pregnancy tests and an Internal Ultrasound later I was in Theater about to have a 6cm Ovarian Cyst removed. I woke up an hour or so later and was cheerfully informed by the surgeon that the Cyst was, in fact, bigger than expected at 8.5cm but he had removed it and didn’t spot anything such as Endometriosis whilst inside.

That is why I don’t know if my journey started 2 years ago or 12.

2 years ago a surgeon didn’t see any Endometriosis yet now I am armed with a diagnosis and extensive knowledge of the condition, I know that for years I showed signs, subtle signs, but signs. I spent my 15th Birthday in Hospital with unexplained stomach pain that was eventually dismissed as “probably an infection.” I remember periods always being heavy, very heavy and I remember them always hurting. At 16 I remember them being so bad one month I struggled to get out of bed. My boyfriend at the time wanted to go somewhere so I manned up and we went to Costa, I ordered my favorite drink, a hot chocolate – I tried to ignore my cramps and sip my drink but felt too nauseous through pain, eventually I had to admit defeat and beg to go home.

This level of period pain was fairly normal but it seemed to ease around the time I went onto the implant for contraception at 16/17 – I never put two and two together. From there I just continued as I was, my periods were heavy and long but the pain was okay, it wasn’t so bad as I couldn’t get out of bed anymore, so I figured it was all okay.

At 19 I had started a new relationship and was noticing Intercourse was painful. I visited my GP and then a specialist, I had a number of tests, swabs and internal exams carried out until I was finally sent away with: “Just try to relax more during intercourse” Excellent advice – why on Earth hadn’t I thought of that before?!

A year later I had the Mother of all periods – I don’t know why that month my womb decided to suddenly put her all into the “spring clean” but man I got a shock. So off I went to my GP, still a little traumatized that last time I went I had effectively been told not to be so frigid by a Dr and still at an age I was grossed out talking periods and stuff. I will never forget what this GP told me: “Some women have heavy periods, some don’t. This is just your lot I’m afraid, it’s certainly heavier than most but that is just your normal” At this point I had bled through tampons and pads within the space of an hour at a time, I felt dizzy and I was in pain, I had really thought this was abnormal but the GP delivered the statement so bluntly, I felt stupid for visiting.

From that day on, whenever asked “And do you have heavy periods?” I would reply “Oh, kind of, but I know that’s sometimes just normal, it’s normal for me”. From that appointment I kind of just coped – I had felt so stupid and embarrassed in her office I never wanted to go back. So I just battled on with my 10-14 day heavy and irregular periods and the ensuing pain. I had my implant replaced when needed and that was that – until my Cyst 2 years ago.

Following the surgery to remove my Cyst I had my implant removed, I wanted a break from the hormones I had been on for around 8 years. In the months following its removal, I was a frequent visitor in A&E, unable to manage the pain of ovulating and menstruating, both of which had suddenly started intensifying. I saw a Gynae and was placed on a list for investigatory Laparoscopic surgery, the date of this surgery was moved forwards as I became less and less able to manage the pain.  In May 2017 I had a Laparoscopy in which they found and removed Endometriosis whilst inserting a Marina Coil to treat and prevent it.

To this date, I am not entirely sure where it was found or how much, all I know is that they only had 45 mins free to carry out the surgery – so they treated what they saw and no more. Laparoscopies should provide roughly 1-2 years of relief, I received 4 weeks before the familiar aches and pains started again. One year on and I am no better off than I was before the surgery. Currently, I am awaiting a referral to a new specialist, I am doing my best and learning to live as a chronic pain sufferer.

Most of all, I am educating myself.

Throughout my journey, it has felt like The Blind Leading The Blind, Dr’s know so little about the condition, it is hard to have faith in them when they have so little confidence in what they are advising. They don’t always spot the clear indications, the textbook symptoms and then once you are diagnosed, they know there is no easy answer, no magic pill. So yeah, that’s pretty much my story. There is so much more to it than a Timeline of events but I have tried to keep it as brief as possible whilst including all the important bits… I hope today is a good day for anybody reading!

Words of Advice: Be your own advocate – you have to go home and live your life. Push for a diagnosis, do research, ask your Dr any questions you have, find the treatment plans YOU want to explore. Seek support from the Endo community, find ladies to talk to for advice or just comfort. You will feel alone and overwhelmed at times but so many women understand. Mostly, be kind to yourself. Accept your limits, with them, remind yourself this is not a choice you made but an unfortunate part of your life. You can still choose how you live it.

If you would like to e-mail Devon, you can do so here and you can follow her blog.

Thank you for sharing your story Devon, I could relate with many parts. I pray that the docs find a cure, Lord knows, millions of women need it. Grace, peace, and strength unto you.

What To Pack in Your Hospital Bag Before Surgery

I went for my first surgery dressed in jeans. It was a day surgery, needless to say, that was a horrible idea. Dressing up afterward was not easy, my bladder was sore and my urethra was upset that a catheter had gone visiting, yet there I was trying to keep up with fashion and fit into a snug pair of jeans while anesthesia coursed through my veins. For another one of my surgeries, I wore a loose dress but I over packed and looked like I would be staying at the hospital for several weeks.

Five surgeries later, I have narrowed the contents of my bag down to necessities and comfort. Before I pack it, I ask myself is it necessary? Will it make me feel more comfortable?

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Here are a few items that make it into my bag:

For the hospital stay

  • Surgery documents, pre-authorization forms if you need them
  • A packet of pads or panty liners in case you bleed post-op
  • Toiletries (toothpaste, toothbrush, flannel, shower gel/soap, lip balm, lotion, comb/brush )
  • Wet wipes to freshen up
  • Low waist or high rising underwear ( granny panties) that don’t touch the incision scars, and are easy to wear and remove
  • Comfortable bra preferably without an underwire
  • Shoes that are easy to slip on like sandals so you don’t have to bend
  • Entertainment: colors and coloring book, a book to read, music/ podcasts to listen to
  • Sweater and socks if you feel cold
  • A blankie / Maasai blanket
  • Phone and charger
  • A notebook – note down any questions you have that you want to ask the doctor before the surgery and any questions you want to ask during your post operation review. Also, you can write down the side effects of drugs to look out for when you go home.
  • Snacks – if you carry any, make sure that they do not cause bloating

For the journey home

  • Comfortable clothes to leave the hospital – yoga pants or a maxi dress
  • A pillow
  • Something to fold and put between you and the safety belt.

Confirm what your hospital gives you so that you decide if you need to add items onto this list.

As you plan for the surgery, I pray that you will experience God’s peace and that His joy will be your strength. May you know that He is right there with you through it all.

Deuteronomy 31:8 New International Version (NIV)

The Lord himself goes before you and will be with you; he will never leave you nor forsake you. Do not be afraid; do not be discouraged.”

Is there something that you packed and was a lifesaver, that you’d like to share with other endo warriors? Please leave a comment below.

 

 

When Healing Was An Idol

I idolized healing.

It was the destination, my checkbox before I could be happy, better yet, live my life. It was the proverbial ‘GO’ in Monopoly that I needed to pass before I could get $200. It was exactly what I lived for. What I craved. What I needed.

Then it didn’t happen.

Needless to say, I was crushed. Life came to a standstill, but it’s not exactly like it was moving, remember it was standing still because I was waiting for a miracle. As I stood, the clock kept ticking and tocking, and time, precious time, kept going. My dreams, those that were time sensitive, well they just fizzled out, others became forgotten and life went as it may.

#Mybestlifenow was not a hashtag I would have used, #survivor #barelysurviving were more apt for any post that I would make. Nothing was happening, well a lot was happening, I was sinking into a hole, frustrated that I was not moving forward.

It was a hard place to be.

One day I saw the light, I realized that healing may not be a destination. I took control of what I could control and started making small steps, taking responsibility for my happiness.

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God has brought me a long way, and I am not where I used to be. Now I am making the most of what I have in my hands. I may not choose my cards, but I can choose to have joy. As I have obeyed, the healing has come. This time it is not the focus, it is not an idol.

Here’s to choosing joy, remaining obedient, shining your light, keeping hope alive and keeping God at His rightful place.

A Conversation About Menstruation – MHDay2018

When we take away the shame that surrounds menstruation, girls and women will truly be able to walk in freedom.

Being born with a uterus should not be a disadvantage. Being born with a uterus should not stagnate your dreams. Being born with a uterus should not make you spend time away from school or work every month.

To commemorate Menstrual Hygiene day 2018, We For She organized an event at Ronald Ngala Primary School in Mombasa.

It was nice to see boys and girls eager to learn more about menstrual hygiene. A conversation about menstruation is one that we need to have with people of both genders. Menstruation is not optional, menstrual hygiene and health education should be prioritized.

I was invited to speak about menstrual health education and endometriosis. It was good to create awareness about endometriosis even to preteens. I urged the stakeholders present to offer comprehensive menstrual health education to the girls, including stressing the importance of understanding your hormonal functions and how to decipher your periods.

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The Mombasa County Women Representative Hon Asha Mohamed took the microphone and shared her journey with Endometriosis. Her vulnerability and willingness to share her journey was beautiful. We may be one in ten women, but we are more than just a statistic. We are mothers, sisters, wives, cousins, and friends to many other men and women. Our voices matter.

I applaud you Hon Asha Mohamed. Thank you for standing with us and for amplifying our voice.

Tina Leslie of Freeedom4girls shared about period poverty. The reusable menstrual products are a great alternative for girls and women who miss school and work because of lack of sanitary products. Also, these products are environmentally friendly.

The theme of this year’s Menstrual Hygiene days was #NoMoreLimits. Here’s to girls and women achieving their dreams and living their lives to the fullest.