Endo Warriors At The Coast

If you are tired, learn to rest, not quit.

2019 has had more water breaks than sprints and dashes, but in the quiet moments, I have recharged and found new strength.

One of the ideas that was born in the extended water break was ‘Endo warriors at the Coast’, an idea that I have dabbled with and shelved many times over the years. But, when the time is right, things align, and ideas are actualized. Lives are changed.

Without a doubt, I am convinced that angels exist, that God sends divine helpers to hold our hands, provide solutions and remind us of His steadfast presence.

On 10th November we had our first support group meeting. Days later, my heart is still full. Full of joy, peace, hope and expectation. A group of 10 ladies assembled as strangers, and left three and half hours later, refreshed, and with a larger network of women in Mombasa.

We had an interactive session where we shared our journeys, talked about menstruation, menstrual hygiene products, and the herbs and products that are easily available in Mombasa. It was insightful, informative and refreshing.

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Freedom for Girls donated a pack of reusable pads and liners for each lady. We left with both our hearts and hands full.

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Shufaa shared a video with snippets of the event on her YouTube channel. You see what I meant about angels?

A huge thank-you to everyone who came and made this day possible.

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We have some upcoming events:

26th January 2019 – Endo warriors support meet up

23rd March 2019 – Endometriosis Awareness Event – Mombasa Edition

Details will follow. If you would like to learn more, or even plug in, please drop me a line on yellowendoflower@gmail.com.

Our individual voices may be faint, but together we are an army of warriors, creating a beautiful symphony, that will be heard.

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While We’re Waiting

Waiting can be hard, lonely and devastating. The dark corridors can dull your spark of hope, the echoes of discouragement can fill your cheeks with sadness and cause your eyes to overflow with tears.

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Waiting Wombs Trust is devoted to walking with women who are waiting on the Lord to hold children in their arms. The reasons for waiting may vary but the journey’s hurdles are similar. The love, grace, care and information that you receive from Waiting Wombs Trust are unmatched. They are more than a support group, they are a family, for those who have despaired, those who have lost, those are hanging on, those who are waiting.

They are hosting a ladies conference #hopeinwaiting on September 21st to 23rd at Pelican Lodge, Elementaita.

Some of the topics that they will cover are:

  • Keeping hope alive
  • What to do when he leaves
  • Grieving
  • Adoption
  • Health

If you would like to register or partner with them, please text the word ‘Conference’ to 0723144000 or send an email to info@waitingwombstrust.org.

One of the songs that have encouraged me while I have been in seasons of waiting is

May the Lord strengthen you as you wait, may you truly run and not grow weary. May you soar on wings like eagles.

There is hope in waiting!

Yellow Flower Network

Invisible illness can be lonely, confusing and consuming. There are many times you doubt yourself and the manifestation of the pain. Leaving your bed on somedays can feel like doing calculus, it has to be a calculated move. Some days the method makes sense and on other days, you don’t even know where to start.

The idea to start the Yellow Flower Network was birthed a few weeks ago when I realized that I want to support women in Kenya and give them the personal touch, but I am not physically able to.

My inbox is a buzz with women looking for support, women who have just had surgery, women who would like to meet other women to let them know that they are not going crazy, and that the pain is not all in their heads.

Yellow Flower Network

My desire is that no woman will walk alone, that every Endo-warrior will know that they are not alone. That the thing that tried to break her, will reveal a reservoir of strength and it will enable her to be encourage others.

If you are interested in supporting other Endo warriors in Kenya by texting, calling or visiting them when they are in need (in hospital, post surgery), please send me an email via yellowendoflower@gmail.com and I will be in touch.

To start us off, one of our Endo sisters, Jahmby, needs our help. Let us support her in any way that we can.

Jahmby Koikai

*endometriosis

 

Dear Kenyan Endo Warrior, You Don’t Have to Walk Alone

Living with endometriosis can be hard. A majority of my memories are lonely, scary and empty. But, times have changed. I know that in the event I have a flare up there are women that I can call for advice, support and prayers. Women who get me, and don’t think that I am faking the pain or being unnecessarily sad.

Dear Kenyan Endo Warrior

The Endo community in Kenya has grown. It warms my heart to see the different people shining their lights and encouraging other women. The truth is just because, I walked alone doesn’t mean that other women should walk alone.

If you are looking for women to walk with, cry with and navigate this season with, please see below:

Endometriosis Foundation Of Kenya

It was founded by Elsie Hadassah Wandera. You can read her Endo Story and see what her journey has been like.

There’s a closed Facebook Group for women living with Endometriosis, a Facebook Page to create awareness about Endometriosis and a Whatsapp Group to support Endowarriors in Kenya.

They have meet ups from time to time.

Endo Sisters East Africa

It was founded by Doris Murimi.

They have an office in Thika at Gospel Preachers Church, Karibaribi, Thika, near Mary Hill Girls school. You can follow the conversations on their Facebook Page.

They have their first monthly meet up on Saturday 6th May 2017 at Cake Plaza next Prestige Plaza, off Ngong Road, at 3pm – 6pm.

They go to schools and talk to girls about Endometriosis. If you would like to invite them to your school, you can send them an Email.

Waiting Wombs Trust

It was founded by Editah Hadassah Trip. You can read her Endo Story and see how the Trust was born.

They have a closed Facebook Page where they walk with women who are waiting to conceive and encourage them.

They will have their first meet up on 17th June 2017 in Nairobi from 2pm at a venue to be confirmed.

If you are feeling overwhelmed and depressed and you would like to talk to someone, please send me an email and I will put you in touch with someone who can walk with you.

Please don’t suffer alone. As always, I am here to pray with you, cry with you and laugh with you, because I believe that one day, soon, we will laugh.

Blessings,

Ess

5 Ways You Can Support An EndoWarrior

Endometriosis affects 1 in 10 women. This means, if you know 10 women, you know Endometriosis.

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The fact that it’s an invisible disease makes it difficult for women to get diagnosis and for people to relate with her and the pain. Because of the nature of the disease, and the societal norms, women find it hard to speak about Endo and even reach out for help.

It is more than just a woman’s disease, it affects the society as a whole. Women, daughters and sisters are affected. Fathers, husbands and brothers too.

5 Ways Tolove on an ENDOWARRIOR

Here are a few ways that you can support a woman who has Endometriosis:

  1. Believe Her

When she says that she is in pain, believe her. When she struggles to get out of bed, believe her. When she is too inflamed and bloated to fit in her normal clothes, and takes very long to get ready, believe her. When she says sex hurts too much, believe her. When she says she’d love to meet up but she just can’t, believe her. When she says she is on the verge of giving up hope, believe her.

Believe her. Believe her. Believe her.

The best form of love and understanding stems from a place of believing without a shadow of doubt that she is in pain and not pretending.

This understanding will help you be sensitive when you ask her questions and comment on her daily struggle.

2. Listen to Her

Hear her out, don’t dismiss her pain. Listen to her dreams, her fears, her jokes and her heart. Listen to her words and also to her actions; gently encourage her when she sinks into the valley of sadness.

3. Do Your Research

Take a personal interest in the condition and seek to be knowledgeable. There is a lot of valuable information on the internet. Read up about Endo, go onto forums and ask questions. Read the leaflets that come with the medicine that she is on. Research on

4. Be Present

Let her know that you are in this together. Go for the consultations together. Take an interest in her daily routine, encourage her to do things that help her. If she goes on the Endo diet, help her plan her meals. Join her in some of the meals.

5. Love her as she is

Don’t try to change her to be the woman you remember her being or the woman of your dreams. Love her as she is. Accept the challenges that she faces and help her work around them. Speak words of life and love.

Your support means a lot.

Blessings,

Ess